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Background: Guillain-Barré Syndrome (GBS) is a debilitating autoimmune disorder that affects the peripheral nervous system. While its global incidence is relatively low, the impact on individuals and families can be significant. This qualitative study explored the lived experiences of individuals hospitalized with GBS in Ethiopia, where access to healthcare and information about the disease can be limited.
Objective: This study aims to describe the lived experiences of individuals who have been hospitalized due to Guillain-Barré syndrome (GBS).
Method: A qualitative phenomenological approach was employed. Ten participants, who had been hospitalized with GBS between 2014 and 2024, were recruited through purposive and snowball sampling. In-depth interviews were conducted in Amharic and digitally recorded. Data analysis involved identifying themes and sub-themes related to participants' experiences.
Results: The findings of this study revealed the multifaceted experiences of individuals hospitalized with GBS. Participants described the initial symptoms, the progression of the condition, the challenges they faced during hospitalization, and the impact on their daily lives. Themes emerged related to physical limitations, emotional distress, social support, and coping strategies. The study shed light on the difficulties faced by individuals due to limited access to healthcare and information about GBS in Ethiopia.
Conclusion and Recommendation: This study provided valuable insights into the lived experiences of individuals hospitalized with GBS in Ethiopia. The findings emphasize the need for improved healthcare services, increased awareness about GBS, and comprehensive support systems for patients and their families. Further research is recommended to explore interventions and palliative care strategies to address the challenges faced by individuals living with GBS in low-income settings. |
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